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HAQ-DI: Meaning, Scoring and Clinical Use

The HAQ-DI is a standardized questionnaire measuring physical disability in daily activities, widely used in rheumatology especially for patients with rheumatoid arthritis.

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The HAQ-DI is a standardized questionnaire measuring physical disability in daily activities, widely used in rheumatology especially for patients with rheumatoid arthritis.

What is the HAQ-DI?

The HAQ-DI (Health Assessment Questionnaire Disability Index) is an internationally recognized tool used to assess functional limitations and physical disability in daily life. It was developed in the early 1980s by James Fries and colleagues at Stanford University and is now one of the most widely used assessment instruments in rheumatology.

The HAQ-DI measures the degree to which a person is limited in basic physical activities of daily living due to their condition. It is primarily used in patients with rheumatoid arthritis, but also in other rheumatic and musculoskeletal diseases.

Structure and Content of the Questionnaire

The HAQ-DI consists of 20 questions grouped into eight categories of daily activities:

  • Dressing and grooming
  • Arising (e.g., from a chair or bed)
  • Eating
  • Walking
  • Hygiene (e.g., bathing, using the toilet)
  • Reaching objects
  • Gripping objects
  • Common daily activities (e.g., shopping, household tasks)

Each question offers four response options describing the level of difficulty experienced:

  • 0 = Without any difficulty
  • 1 = With some difficulty
  • 2 = With much difficulty
  • 3 = Unable to do

Scoring and Interpretation

The HAQ-DI score is calculated as the average of the highest scores across each of the eight categories. The total score ranges from 0 to 3, interpreted as follows:

  • 0.0 – 1.0: Mild disability
  • 1.0 – 2.0: Moderate disability
  • 2.0 – 3.0: Severe disability

A score of 0 indicates no functional limitations. Higher scores reflect greater levels of physical impairment. The use of assistive devices (e.g., a walking cane or wheelchair) or the need for assistance from another person can increase the category score, thereby raising the overall HAQ-DI value.

Clinical Significance and Applications

The HAQ-DI is used in both clinical practice and research to:

  • Document the functional status of patients at a given point in time
  • Track disease progression and changes in physical function over time
  • Evaluate the effectiveness of treatments such as biologics or DMARDs (disease-modifying antirheumatic drugs)
  • Assess health-related quality of life

The HAQ-DI also serves as a prognostic marker, as higher scores are associated with an increased risk of work disability, need for personal care, and mortality in patients with rheumatic diseases.

Related Instruments

In addition to the standard HAQ-DI, several modified versions exist, including the Modified HAQ (MHAQ), which includes only 8 questions, and the PROMIS HAQ, designed for digital and electronic health data collection. The HAQ-DI is part of the broader Health Assessment Questionnaire (HAQ), which also includes pain scales and other health-related measures.

References

  1. Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis & Rheumatism. 1980;23(2):137-145.
  2. Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: a review of its history, issues, progress, and documentation. Journal of Rheumatology. 2003;30(1):167-178.
  3. Smolen JS et al. EULAR recommendations for the management of rheumatoid arthritis with synthetic and biological disease-modifying antirheumatic drugs. Annals of the Rheumatic Diseases. 2020;79(6):685-699.

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